Submitted by Amy Laws (not verified) on Wed, 02/20/2008 - 9:21am.
As a parent of an 11 year old son with LND, your paper is very interesting. I was wondering if you are currently conducting any research on this matter to help find treatment or a cure. I don't think you really touched on the fact that these kids are all in wheelchairs as well, which emphasises the impact the disease has over their motor skills and the amount of control it requires them to have to make the simplest movements. My son was first diagnosed with mitochondrial disease, which also seems to be a counterpart to the LND, I've been told. This may be another avenue of interest for you to research and write about.
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Parent of LND child
As a parent of an 11 year old son with LND, your paper is very interesting. I was wondering if you are currently conducting any research on this matter to help find treatment or a cure. I don't think you really touched on the fact that these kids are all in wheelchairs as well, which emphasises the impact the disease has over their motor skills and the amount of control it requires them to have to make the simplest movements. My son was first diagnosed with mitochondrial disease, which also seems to be a counterpart to the LND, I've been told. This may be another avenue of interest for you to research and write about.