Submitted by weezie (not verified) on Thu, 05/08/2008 - 1:49pm.
In Dec 2007, I started with a bad chest cold and sporadic tiredness. Family GP threw meds at me and after the prozac and xanax treatment, i switched to Internal Med. 2 days before the appt with my new doc, I felt an explosion in the back of my neck. about that time, I had a VERY sore neck and then the postural headaches started. she checked me out and ordered a CT, which found a pituitary tumor. Then I went for an MRI to size-up the tumor (10-12mm). Labs were run and the mass "was not affecting me chemically." i have seen an endocrinologist, a neuro-opthomologist and 3 neuro surgeons. luckily the 3rd neuro surgeon figured out that I must have a CSF leak. He ordered a brain MRI (lying down) and a lumbar puncture (opening pressure 16 - should be between 12 and 20?). I am trying a neurologist and just had a cisternogram (over 3 days), which showed nothing, even though I cried when I had to sit up for hours before the scan, to aggrevate the leak. The neurologist has put me on prednisone, amitriptyline and celebrex. he encourages bed rest and well, he's just not sure. i am 35 with a 5 and 7 year old. i have been home from work 3-1/2 months now. is the leak related to the tumor? will this heal by itself? will it happen again??
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Narrative is determined not by a desire to narrate
but by a desire to exchange. (Roland Barthes, S/Z)
"your pituitary tumor is not causing your headaches"
In Dec 2007, I started with a bad chest cold and sporadic tiredness. Family GP threw meds at me and after the prozac and xanax treatment, i switched to Internal Med. 2 days before the appt with my new doc, I felt an explosion in the back of my neck. about that time, I had a VERY sore neck and then the postural headaches started. she checked me out and ordered a CT, which found a pituitary tumor. Then I went for an MRI to size-up the tumor (10-12mm). Labs were run and the mass "was not affecting me chemically." i have seen an endocrinologist, a neuro-opthomologist and 3 neuro surgeons. luckily the 3rd neuro surgeon figured out that I must have a CSF leak. He ordered a brain MRI (lying down) and a lumbar puncture (opening pressure 16 - should be between 12 and 20?). I am trying a neurologist and just had a cisternogram (over 3 days), which showed nothing, even though I cried when I had to sit up for hours before the scan, to aggrevate the leak. The neurologist has put me on prednisone, amitriptyline and celebrex. he encourages bed rest and well, he's just not sure. i am 35 with a 5 and 7 year old. i have been home from work 3-1/2 months now. is the leak related to the tumor? will this heal by itself? will it happen again??