Submitted by Sandi (not verified) on Mon, 08/18/2008 - 11:56pm.
I too have had a csf leak which occured after I hit my head in January this year. It took over 3 weeks to diagnose they initially said I had whiplash. When I finally got an mri I had no csf around my brain, and major pooling outside the spinal column. 3 blood patches later and after my last MRI in may I too have had my neurosurgeon declare me resolved. The problem is I am not 100% and am back at work although on a graded program. I kept being told time would cure it and hopefully it will but after 7 months it becomes a little frustrating. There has only been 5 or 6 diagnosed people like me in Brisbane so I guess it is rare but the 2 neurosurgeons I saw didn't mention any research that was currently being done into the ongoing symptomology. Ihave a residual headache and get very tired quite easily, my memory has been effected but is improving and my hearing was originally effected but seems to have resolved. Sites like this one actually help you realise that you are not alone, which is very different to how it feels most of the time.
Sandi
»
Reply
Search Serendip
Narrative is determined not by a desire to narrate
but by a desire to exchange. (Roland Barthes, S/Z)
I too have had a csf leak
I too have had a csf leak which occured after I hit my head in January this year. It took over 3 weeks to diagnose they initially said I had whiplash. When I finally got an mri I had no csf around my brain, and major pooling outside the spinal column. 3 blood patches later and after my last MRI in may I too have had my neurosurgeon declare me resolved. The problem is I am not 100% and am back at work although on a graded program. I kept being told time would cure it and hopefully it will but after 7 months it becomes a little frustrating. There has only been 5 or 6 diagnosed people like me in Brisbane so I guess it is rare but the 2 neurosurgeons I saw didn't mention any research that was currently being done into the ongoing symptomology. Ihave a residual headache and get very tired quite easily, my memory has been effected but is improving and my hearing was originally effected but seems to have resolved. Sites like this one actually help you realise that you are not alone, which is very different to how it feels most of the time.
Sandi