Submitted by Jan (not verified) on Fri, 07/04/2008 - 2:55pm.
I'm so glad to have found this website where other people are speaking of problems that sound similar to mine. For 8 months, I have had total absense of 'correct' sensation throughout my body. It feels as though I have undergone an anaesthetic but never quite 'woken up' again. I have difficulty sensing textures and my face is entirely 'asleep'. Same with my skin all over generally. But most noticable on my face and scalp. I can move fine so far but I have lost my sense of smell and taste and cannot feel the roof of my mouth, etc. Sometimes I have pain in my head and behind my face as though nerves are attempting to work but aren't working properly? It feels as though the inside of my head has 'shut down'. I cannot sense inner sensations such as tiredness of limbs, manipulation of muscles, tingling sensations, etc (like when having a massage). It is though I am 'dead' to those sensations. The worst thing is attempting to explain it to outsiders - it sounds so weird that it's virtually impossible to try and make people aware of what you mean and what you are feeling (or rather not feeling!) When it first happened, it was so very frightening! I didn't have a clue what was happening to me and every day I fear something else is going to happen and it will worsen. I have been to doctors, had a brain scan, etc, etc. And nothing physical has been found. I have seen a psychologist and a psychiatrist and even they are puzzled and don't seem to be able to provide me with any firm or definite answers (other than working on a theory that it could be some kind of conversion disorder). However, I must admit that even they aren't certain of this. This only fuels my worry over what has happened because I end up thinking to myself "Who on earth is going to help me?" "What am I supposed to do to try and make it come right again?" It's all so scary. It's not like there's a special pill you can take that will make it all come right again or help to lessen the symptoms. So, what are you supposed to do? I feel so alone and worried by what has happened to me and even though I don't know any of you guys in person, I must say it is something of a relief and comfort to hear about you and realise I am not alone. Thanks, guys. And best of luck to all of you!
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REASSURING TO HEAR OF OTHERS WITH THE SAME
I'm so glad to have found this website where other people are speaking of problems that sound similar to mine. For 8 months, I have had total absense of 'correct' sensation throughout my body. It feels as though I have undergone an anaesthetic but never quite 'woken up' again. I have difficulty sensing textures and my face is entirely 'asleep'. Same with my skin all over generally. But most noticable on my face and scalp. I can move fine so far but I have lost my sense of smell and taste and cannot feel the roof of my mouth, etc. Sometimes I have pain in my head and behind my face as though nerves are attempting to work but aren't working properly? It feels as though the inside of my head has 'shut down'. I cannot sense inner sensations such as tiredness of limbs, manipulation of muscles, tingling sensations, etc (like when having a massage). It is though I am 'dead' to those sensations. The worst thing is attempting to explain it to outsiders - it sounds so weird that it's virtually impossible to try and make people aware of what you mean and what you are feeling (or rather not feeling!) When it first happened, it was so very frightening! I didn't have a clue what was happening to me and every day I fear something else is going to happen and it will worsen. I have been to doctors, had a brain scan, etc, etc. And nothing physical has been found. I have seen a psychologist and a psychiatrist and even they are puzzled and don't seem to be able to provide me with any firm or definite answers (other than working on a theory that it could be some kind of conversion disorder). However, I must admit that even they aren't certain of this. This only fuels my worry over what has happened because I end up thinking to myself "Who on earth is going to help me?" "What am I supposed to do to try and make it come right again?" It's all so scary. It's not like there's a special pill you can take that will make it all come right again or help to lessen the symptoms. So, what are you supposed to do? I feel so alone and worried by what has happened to me and even though I don't know any of you guys in person, I must say it is something of a relief and comfort to hear about you and realise I am not alone. Thanks, guys. And best of luck to all of you!