I don't know what to tell you to do, I can only tell you what I have had to do. I had my surgery in 1988 followed by another surgery for hydrocephlys. I have had a headache ever since. In the past 6-8 yrs. my symptoms have all come back and more. I have little or no balance (I now use a cane and a walker) and the pain and burning in my arms, back of head, neck and back us horrible. I see a nuerologist on a regular basis and he tells me that there is nothing that can be done about anything but maybe the pain. I have been to 2 pain clinics, had physical therapy, counseling, etc. Most people including doctors and the social security board don't get it at all.  Life is certainly not what I would wish on anyone else. I was recently refered to a new pain clinic and praise the Lord, they have offered me hope for the pain.  I am awaiting a call for an appointment to have a neuro stimulator surgically implanted.  My hopes are high that this will help, they seemed to know what I was going thru and willing to try to help. Maybe you should check this out. It won't help with the balance issues, weakness in my arms, etc. but to be pain free would be great.  Susan